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Medical Ethics, Research and Human Experimentation:
Nonfiction Related to The Immortal Life of Henrietta Lacks


  Alderman, Ellen.
The Right to Privacy
An examination of one of our basic--and most contested--legal and constitutional rights: the right to privacy. Through a seamless interweaving of landmark cases, lesser-known trial decisions, and dozens of anecdotal narratives, the authors make an urgent, complicated issue more absorbing and accessible than ever before.
(323.448 Al23r)
  Andrews, Lori B.
Body Bazaar: The Market for Human Tissue in the Biotechnology Age
Andrews and co-author Nelkin illuminate the business of bodies, telling individual stories to show the profound psychological, social, and financial impacts of the commercialization of human tissue. They explore the problems of privacy and social control that arise with the extraction of information from the body, and the provocative questions of profit and property that follow the creation of marketable products from human bodies. Their findings are shocking, groundbreaking revealing the existence of a $17 billion body business in a true story that reads like science fiction.
(174.25 An26b)
 
Biomedical Ethics: Opposing Viewpoints
Issues in biomedical ethics, including stem cell research, genetic testing, reproductive technology and organ transplantation, are discussed from a variety of viewpoints.
(174.2 B521)
  Bruinius, Harry.
Better for All the World: The Secret History of Forced Sterilization and America's Quest for Racial Purity
Bruinius charts the little-known history of eugenics in America--a movement that began in the early twentieth century and resulted in the forced sterilization of more than 65,000 Americans. He tells the stories of Emma and Carrie Buck, two women trapped in poverty and caught up in a new scientific quest for racial purity. Buck v. Bell became a test case brought before the Supreme Court, which voted 8-1 to make sterilization a constitutionally valid way for the state to prevent anyone deemed "unfit" from having children. The court's majority opinion was written by Oliver Wendell Holmes: "It is better for all the world," Holmes wrote, "if instead of waiting to execute degenerate offspring for crime, or to let them starve for their imbecility, society can prevent those who are manifestly unfit from continuing their kind."
(363.92 B834b)
  Davis, Devra Lee.
The Secret History of the War on Cancer
The War on Cancer set out to find, treat, and cure a disease. Left untouched were many of the things known to cause cancer, including tobacco, the workplace, radiation, or the global environment. Proof of how the world in which we live and work affects whether we get cancer was either overlooked or suppressed. This has been no accident. The War on Cancer was run by leaders of industries that made cancer-causing products, and sometimes also profited from drugs and technologies for finding and treating the disease.
(616.994 D291s)
 
Ethics in Biomedical Research
A four part video series intended to promote thoughtful consideration of the ethical issues that accompany not only biomedical research, but also very basic biological research.
(174.2 Et37 DVD)
  Friedman, David M.
The Immortalists: Charles Lindbergh, Dr. Alexis Carrel, and Their Daring Quest to Live Forever
For all the attention lavished on Charles Lindbergh, one story has remained untold until now: his macabre scientific collaboration with Dr. Alexis Carrel. Together this oddest of couples - one a brilliant surgeon turned social engineer, the other a failed dirt farmer turned hero of the skies - embarked on a secret quest to achieve immortality. Part Frankenstein, part The Professor and the Mad-man, and all true, this is the remarkable story of how two men of prodigious achievement, and equally large character flaws, challenged nature's oldest rule, with consequences - personal, professional, and political - neither man anticipated.
(612.68 F914i)
  Goliszek, Andrew.
In the Name of Science: A History of Secret Programs, Medical Research and Human Experimentation
Science has always had its dark side. Behind the bright promise of life-saving vaccines and life-enhancing technologies lies the true cost of the efforts to develop them. Knowledge has a price; often that price has been human suffering. The ethical limits governing use of the human body in experimentation have been breached, redefined, and breached again---from the moment the first plague-ridden corpse was heaved over the fortifications of a besieged medieval city to the use of cutting-edge gene therapy today. Those limits are in constant need of redefinition, for the goals and the techniques have become both more refined and more secretive.
(619 G581i)
  Jones, James.
Bad Blood: The Tuskegee Syphilis Experiment
From 1932 to 1972, the United States Public Health Service conducted a non-therapeutic experiment involving over 400 black male sharecroppers infected with syphilis. The Tuskegee Study had nothing to do with treatment. It purpose was to trace the spontaneous evolution of the disease in order to learn how syphilis affected black subjects. The men were not told they had syphilis; they were not warned about what the disease might do to them; and, with the exception of a smattering of medication during the first few months, they were not given health care. Instead of the powerful drugs they required, they were given aspirin for their aches and pains. Health officials systematically deceived the men into believing they were patients in a government study of "bad blood", a catch-all phrase black sharecroppers used to describe a host of illnesses. At the end of this 40 year deathwatch, more than 100 men had died from syphilis or related complications. Bad Blood provides compelling answers to the question of how such a tragedy could have been allowed to occur.
(364.142 J718b)
 
Matsumoto, Gary.
Vaccine A: The Covert Government Experiment That's Killing Our Soldiers and Why GIs Are Only the First Victims

Vaccine A uncovers a story of betrayal -- the betrayal of the men and women who serve in the armed forces, the betrayal of medical ethics, and the betrayal of the American people by military and civilian leaders sworn to defend and protect.
(364.142 M429v)

 

Penney, Darby.
The Lives They Left Behind: Suitcases From a State Hospital Attic
More than four hundred abandoned suitcases filled with patients' belongings were found when Willard Psychiatric Center closed in 1995 after 125 years of operation. They are skillfully examined here and compared to the written record to create a moving-and devastating-group portrait of twentieth-century American psychiatric care.
(362.21 P383l)
  Quinn, Susan.
Human Trials: Scientists, Investors and Patients in the Quest For a Cure
Over fifty million people suffer from some form of autoimmune disease-multiple sclerosis, arthritis, lupus, and other afflictions in which the body attacks itself-none of them with a lasting cure. Susan Quinn has investigated the worlds where new autoimmune drugs are being developed: the research labs, the drug-company boardrooms, and the clinics where patients become "subjects" in the search for new medicines and treatments.
(616.97807 Q448h)
 
Rymer, Russ.
Genie: A Scientific Tragedy
The compelling story of a young woman's emergence into the world after spending her first 13 years strapped to a chair, and her rescue and exploitation by scientists hoping to gain new insight into language acquisition.
(362.76 R987g)
 
Tucker, Todd.
The Great Starvation Experiment: The Heroic Men Who Starved So That Millions Could Live
The harrowing story of thirty-six young men who willingly and bravely faced down profound, consuming hunger. As conscientious objectors during World War II, these men were eager to help in the war effort but restricted from combat by their pacifist beliefs. So, instead, they volunteered to become guinea pigs in one of the most unusual experiments in medical history -- one that required a year of systematic starvation.
(940.531 T798g)
  Washington, Harriet.
Medical Apartheid: The Dark History of Medical Experimentation on Black Americans From Colonial Times to the Present
From the era of slavery to the present day, the first full history of black America's shocking mistreatment as unwilling and unwitting experimental subjects at the hands of the medical establishment.
(174.28 W277m)
  Weinberg, Robert.
One Renegade Cell: How Cancer Begins
An accessible and state-of-the-art account of how the disease begins and how, one day, it will be cured.
(616.994 W43o)
  Welsome, Eileen.
The Plutonium Files: America's Secret Medical Experiments in the Cold War
Pulitzer Prize-winning reporter Eileen Welsome reveals for the first time the breadth of the extraordinary fifty-year cover-up surrounding the plutonium injections, as well as the deceitful nature of thousands of other experiments conducted on American citizens in the postwar years. Welsome's remarkable investigation spans the 1930s to the 1990s and draws upon hundreds of newly declassified documents and other primary sources to disclose this shadowy chapter in American history.
(616.9897 W465p)

 

White, Augustus A,
Seeing Patients: Unconscious Bias in Health Care
Dr. White, who grew up in the segregated South, is the first African American department chief at Harvard's teaching hospital. In this valuable contribution to understanding historical bias in healthcare toward minorities and women and improving the physician-patient relationship, he shares insights from personal experience and practical suggestions for enhancing awareness of cultural issues and the delivery of nondiscriminatory medical care.
(610.922 W582s)

 

More Information:

Special Events | Related Websites

 

The Immortal Life of Henrietta Lacks:
Author Rebecca Skloot | Discussion questions

The Evolution of Calpurnia Tate:
Author Jacqueline Kelly | Discussion questions

Booklists
First, Do No Harm: Medical Ethics and Human Experimentation in Fiction
Henrietta and Calpurnia: Audiobooks
Medical Ethics, Research and Human Experimentation: Nonfiction Related to The Immortal Life of Henrietta Lacks
Exploring Science and Nature: Books for Kids & Teens Related to The Evolution of Calpurnia Tate

 

 

3/20/12
Duluth Public Library, 520 W. Superior St., Duluth, MN 55802